We have been
working "behind the scenes" to restructure The Stone Circle of Friends
so that we can have a greater impact on the research for Myotonic
Muscular Dystrophy. We are looking forward to again actively holding
events to increase awareness and funds for our important cause,
starting in 2010.
Thank you for those of you who have given consistently in any
amount and for folks that have offered to help with fundraising
activities in the future. We are still taking donations so if you have
a few or more dollars to spare please consider giving to expedite a
cure for MMD.
The Stone Circle of Friends Continue to
Push the Research Forward!
and Donna Stone
and their hard working
volunteers held a "Blue
at the Stone Barn in
Harrisonburg, Va. They raised over $30,000 which he will donate to
UVA's MMD Lab. The party was attended by over 200 guests... who braved
the torrential rain-- over 400 people contributed to the cause.
about and the boys helped
produce a TV program for Henrico County Muscular Dystrophy
which is airing
on Channel 17 this week, November 16th through 22nd.
will be speaking again in Washington DC at the end of this month to the
Institute of Health
. The NIH is the primary source of funding of
Circle co-sponsored Rick Guidotti
a well known New York ex fashion
a non profit committed to people with genetic
differences. By taking exceptional photographs, Rick helps us to
redefine what is beautiful in our culture. We will be able to use these
photographs in our printed materials to increase advocacy efforts.
Also, Rick has many gallery exhibits and Myotonic Muscular Dystrophy
will be included. Rick was able to photograph many children and adults
who attended the family MMD conference in California this October. His
work is transforming to to both the subject and the viewer.