Happening to Move MMD Research Forward!
| Dear supporter,
It has been three
years since we received the news of our diagnosis and we continue
to be amazed by your generosity, friendship and support.
This year we chose not to have our biggest annual fundraiser, our
MMD Gala. We are in the process of reorganizing our infrastructure so
that we can keep up with our many fund-raising ideas. Establishing our Board of Directors and
Event Committees will make it easier for us to continue our work.
Our need for funding
still remains. The diagnosis has not changed, the illness still
affects our boys daily, and of course it affects our entire family
daily. We have met other families with the same diagnosis who are also
struggling and hoping for a therapy or cure. Your contributions are
still badly needed to help us move forward.
Hamlin's Miles for Muscles is a
great opportunity for you to contribute in any amount that is
comfortable for you. Mike has become a friend over the
past year. Although Mike has MMD that is progressing, he has
organized a team to ride in the infamous Sea Gull Century Ride. Please
consider giving generously. 100% of the money raised with go to Dr.
Mahadevan's research team at the University of Virginia MMD lab.
Thank you for all that you have given,
Todd and Edibell Stone
2010 Main Event!
Join or Sponsor Mike Hamlin in the Miles
October 9, 2010
scene... You are riding your bike with your family and friends,
for 100 miles in a beautiful beach setting, on flat roads, towards
Ocean in the early fall...while helping the world be a
better place? Would you like to train for such a ride with us?
Or if it is
not even a remote possibility would you sponsor a rider? For ANY amount?
Muscles will be one of the many teams at the Sea Gull Century Ride in
click to visit website...
Mike Hamlin is
a rider with tremendous focus. A once avid cyclist, he is now training
for this ride. Mike has MMD and he feels it.
He faces challenges as his upper body
and torso muscles, coordination,
and stamina diminished, but he gains tremendous strength from the
amazing support of people like you. For the next generation, he
for a cure for MMD.
Mike is training now and will be on his recumbent
trike doing his best to ride with the Miles for Muscles team across the
finish line in October.
This is not about speed, it is about determination and great rewards.
Anyone is welcome to ride.
You can help
him and all MMD families cross the finish line--please join him and or
to view slide show...
Nicholas and Elliott are amazing to me. They are able to enjoy life despite their increasing
limitations. Their short spurts of energy show me their inner quest for
adventure and their love for life.
Recently, a friend and photographer, Lucky
Judd shot some pictures of the boys in our new neighborhood near
the lake. As a gift to us he compiled
the pictures, added music and created a slide show.
If you are
wondering about them, this slide tells it all.
|Irish Festival 2010
March 22, 2010
to read more...
|What fun!!! This year we were once again invited to serve
food to the tremendous crowds that attend this very fun festival.
We had numerous volunteers that made this task very enjoyable as well
as efficient. Last year the festival donated generously to MMD research
for our work. This year the donation was even greater, $7500!!!
directly to MMD research--for us, it doesn't get any better than that!
Thank you to all who volunteered!
Emily Lacy, Kara Adams, Ara Duszak, Kara Nance, Kara & Samuel Wood,
Mary & Dean Simpson, Jennifer Medley, John Ramey, David Reams, Amy
Rolley, Jessie Rolley, Jenney Rolley, Thomas Wildberger, Amanda McGhee,
Sheela Shrestha, Jacque Cherry, Hillary & Larry Hogan, Claire
Cardwell, Kirsten Burt, Grant Kibler, Ambrosia Mosby, Michael Herring
| Please give.
and hope for the future,
Having this illness provides our community with an opportunity to make
life better for many many people who are suffering.
When MMD children grow
up, these disabled young adults will find that the world is not as
comfortable or as safe as they once believed. For these young adults
with multiple disabilities the future can seem bleak, further
separating them from mainstream society.
I know parents in their eighties with adult children with MMD, who at
times wish to outlive them, in fear of what will become of them. Who
will care for them?
We can change this dark picture by continuing to fund treatment
options. I am asking you dearly for your continued support.
MMD is the most common form of adult Muscular Dystrophy, and second
most common in children.
Please give in any amount to Mike Hamlin's Miles for Muscles team--It
means the world to us.
Stone Circle Of Friends